Simulating the Rare Disease Diagnostic Journey

Emily Esther Nielsen, Tom Owen, Matthew Roach, Alan Dix

Allbwn ymchwil: Pennod mewn Llyfr/Adroddiad/Trafodion CynhadleddCyfraniad mewn cynhadleddadolygiad gan gymheiriaid

Crynodeb

In this paper, we propose a demonstration of a race to diagnosis game for a given rare condition. By simulating a rare disease diagnosis scenario, we can attain statistical significance to evaluate pre-diagnostic technology in a laboratory study (which will take place after the conference) by recruiting participants from the general population, rather than from rare disease groups. No data will be collected at the conference, but attendees will be given the opportunity to play the game using an interactive presentation. This demonstration will facilitate discussions on creative solutions to challenges regarding participant recruitment as well as alternative approaches to study design.

Iaith wreiddiolSaesneg
TeitlEICS 2023 Companion - Companion of the 2023 ACM SIGCHI Symposium on Engineering Interactive Computing Systems
CyhoeddwrAssociation for Computing Machinery, Inc
Tudalennau79-81
Nifer y tudalennau3
ISBN (Electronig)9781450390316
Dynodwyr Gwrthrych Digidol (DOIs)
StatwsCyhoeddwyd - 27 Meh 2023
Cyhoeddwyd yn allanolIe
Digwyddiad15th ACM SIGCHI Symposium on Engineering Interactive Computing Systems, EICS 2023 -
Hyd: 27 Meh 202330 Meh 2023

Cyfres gyhoeddiadau

EnwEICS 2023 Companion - Companion of the 2023 ACM SIGCHI Symposium on Engineering Interactive Computing Systems

Cynhadledd

Cynhadledd15th ACM SIGCHI Symposium on Engineering Interactive Computing Systems, EICS 2023
Cyfnod27/06/2330/06/23

Dyfynnu hyn